Geez whatever I thought of posting has fled my mind. Guess it might be because my husband and I got to go out and eat at the Olive Garden, alone, and had a nice time. Our daughter Cyndi came by to sit with my mom and we thank her for that. Also got a break last weekend when our eldest daughter Pam came down and we got to scoot out of the house for a couple of hours to shop. It was nice.
Mom's skilled nursing is over as her orthostatic hypotension is now under control. A speech therapist came by on Friday, not to assess her speech, but to evaluate her swallowing. Mom coughs when she drinks any kind of liquids and it seems you use the same muscles to swallow that you do to talk, or something like that. Anyhow she put sent her report to her doctor and they will come and do an x-ray of her swallowing here at the house! Who knew they could do that? Not us for sure. It's better to have medical people come to the house because it is easier on my mom. We took her to the doctor this past Monday and aside from her having low potassium she was doing as well as can be expected. So I'm giving her liquid potassium once a day for three weeks and then they will repeat the test. My days are filled with care giving, doctor visits, health care nurses (now over) and the like. At least I know what is happening to my mom and she's not scared and alone in a strange place. Sometimes she doesn't think she lives here and thinks I'm someone else and I shudder to think what she would do in an unknown environment. End of life care especially when complicated by dementia of the Alzheimer's type is very hard but I draw strength from my family and that certainly helps. One thing I sorely wish for is for mom to let us bring in a paid home health care aide but I don't see it happening anytime soon. She barely let the nurse in the house and sometimes she had to see her out on the patio.
One day while helping to prepare dinner I had left mom on the patio and checked on her every fifteen minutes or so. Well while I was getting pans out from the cupboard we heard a knock on the door and it was a lady that said there was an elderly woman tyring to flag down cars (thankfully from inside the fence that had a locked gate). She told the lady she had been kidnapped and that we were going to kill her. Thank goodness the lady in question said she had gone through something similar with her dad and knew what was happening. So mom has to be watched much closer than I thought. Oh well you do what has to be done.
So kudos to all you caregivers out there. It's a tough job but one I think is doable. Just give yourself a break now and then, easier said than done, but something that is needed.
On a more upbeat note Frank's brother Richard came by for a nice visit and the two bros got to chat and chat for hours. It was fun having him here and listening to their stories. I know it did a world of good for Frank. I'll post a picture or two later on.
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