LITTLE REST LAST NIGHT

Well it was a bumpy night . Mom never did get to sleep. I dozed off and on relying on the baby monitor to alert me if she left her room. She came out of her room a little after 5AM and Frank got up and made her some toast and gave her some orange juice. She went back to her room and came out again a little after seven. All the while even in my stupor, I could hear her talking. Frank made her some oatmeal and she went back to bed but I can hear her still talking and walking around her room. I pray that she surely will have to crash soon.  It is my opinion, based on my experiences in taking care of her that she is 'cycling'. It is a condition that happens every six to seven days that results in extreme erratic behavior. After the behavior ends she crashes into a deep sleep for many hours and when she wakes she is back to her normal self, or what counts for normal given her severe cognitive decline.

Late Night Ramblings

It's 11:30am. I went to sleep about 10 but then was awakened by my mom walking down the hallway. I got up and found her in the kitchen. She was looking for "Homer", an old boyfriend she used to see after our dad died. Homer has since died and I guess he's easier to remember than our dad is since he died 2 years ago and our dad died 9 years ago. Anyway, I got her back into bed and about 15 minutes later she got up again and said her mother was bringing her something and wanted to sit on the porch and wait for her.  Her mother died about 66 years ago. I got her into bed again. Hopefully she'll stay in bed this time and fall asleep and I can get some sleep too. I'll say it again, I wouldn't wish dementia/alz on anyone. It's horrible. I hope other care givers all over the world can get some sleep tonight to face another day in purgatory. There are bright moments to be sure but they are few and far between since her disease has progressed. She was such an independent, regal, smart, tireless and optimistic person that it's heartbreaking to see her deteriorate. Sometimes I pray for her release and then feel bad for doing so. Thank goodness for my husband who helps me get through each day and also our children and grand children who offer the support they can. Friends too, like Elaine. They all are angels and I couldn't do this without them. The posting says I posted this at 9 something pm, I wonder if the blogpost server is on west coast time? Cause it's almost midnight my time.

Catch up on a hot November Sunday



Our mom Nellie, Mike, Cyndi

Cyndi, Frankie, Pam, Evie

Things are going pretty well.The mobile unit came with a group that included a doctor, speech therapist, and an aide. They ran a swallow test on mom and as suspected it showed that she has dysphagia and is at high risk for developing pneumonia from aspirating liquids and food. We had a follow up visit that gave us tips and information on the types of food and drink we should be serving her. She also had to make a trip to the dentist to repair a filling she had been picking at and finally flicked out. Since no water can be used to cool a drill, wash out, etc. they had to do an acrylic one that while not pretty at leas filled the hole left and will prevent anymore decay from setting in. She then had a blood test to check her potassium level. So it was a busy few weeks for us all. She fell last week coming out of the bathroom and Frank got to her before I did and he picked her up and put her on her bed. Luckily she did not hurt herself. She's very wobbly these days so falling is a something we have to watch out for. At a physical therapy session they showed me how to fall with her and let myself take the brunt of it. Hope I don't have to use that technique but something learned is always a good thing.
We did the early voting thing. I went by myself and then my husband and granddaughter went. Wanted to take mom and brought home a sample ballot but she really didn't know what was up. Also (and this made me cry when I saw it) she has trouble signing her name. When the physical therapist had her sign her visit paper mom was printing letters and she printed an 'n eo' and then an 'L' on another line. First time that ever happened. She also forgot how to brush her teeth. I put the toothpaste on the brush and get her started and then she is okay. The decline is slow and painful to watch but she seems happy and we are able to keep her comfy, clean, and fed. I think there are more good days then bad days.
Yesterday our grandson (who just got his Cosmetology license) came and cut my hair, our granddaughters, and mom's. He did a great job and we all good. :-)
The photos are some I found and I don't know if I posted them before but if I did just ignore them. ;-) The one with mom was taken a few months ago when they were taking her to a dance. The one of the brothers and sisters was taken in August when Evie was here.